This trip has been a whirlwind already!
I arrived in Rochester, MN on Sunday March 11th in the afternoon, and had my first appointment the following morning. Walking into Mayo was unlike walking into any hospital I’ve ever been to before. For one, it’s massive and the sheer number of people walking around can be overwhelming. The employees are super friendly, and they have tons of staff whose sole job is to tell you where to go. It’s very easy to get lost, but when you do there is always someone to help. Most of the people there are old, which I guess isn’t surprising since the majority of sick people are old. I was definitely the youngest person at most of my appointments by a good 40 years, but there were a handful of people who were probably between 16-35.
My first appointment was a chest x-ray, which was started and completed before my appointment time. They are incredibly efficient, and don’t waste any time. I then had an EKG, which also went incredibly smoothly, and finished off my cardio tests for the day with the placement of a Holter monitor. I had done all of these tests before, so I’m not sure why they repeated them as they didn’t offer us any new information.
That afternoon, I had a gastroenterology appointment. I really liked the doctor I saw, but was definitely shocked by what he wanted to do. He thinks my GI symptoms are either caused by pelvic floor dysfunction or are a motility issue. I knew what pelvic floor dysfunction was from following some blogs here on WordPress, but I never thought it related to my issues. He ordered an anorectal manometry test, which I was incredibly nervous for and had a minor freak-out the night before over. If you don’t know what that is, google makes it sound way worse than it is, but it still is a very uncomfortable and degrading experience. I think my GI issues may be motility issues, given my autonomic dysfunction. I have a GI transit study scheduled for later this week.
I did the anorectal manometry test the following day, after some blood work. I had to do an enema prep before the test, and since my stomach was already not doing well that day, it made me really sick. The test itself went pretty quickly, as uncomfortable as it was. I don’t know my results yet, but from what I’ve read I’m pretty sure I’ve passed with flying colors and don’t have pelvic floor dysfunction. After that was over, I had an echocardiogram in the afternoon. I’ve also done this test before, so it wasn’t anything new. The woman who was the technician for my echo would tell me to “stop breathing” instead of saying “hold your breath” which I found very amusing.
All of the cardio tests are being reviewed today (Wednesday) and after more testing everything will be reviewed by gastroenterology later this week. I’ll keep ya’ll updated with everything else that’s going on this week. I hope you are all doing well!