I Had Surgery, or Did I?

On June 6th I had an exploratory laparoscopy to look for endometriosis, or did I?

In true Alyssa fashion, things did not go as planned. Preparing for the surgery, everything went fine. I had some anxiety after my pre-op visit with my OB/GYN who was doing the surgery, but then I felt okay and had very little anxiety on the actual surgery day. The day of, things also went well before I went into surgery. They got my IV in with one stick, everyone was really nice, and they even started on time (seriously, when does that happen?). However, I woke up to news I was not expecting to hear.

Essentially, my surgeon tried for an hour and a half (the longest amount of time they are allowed to keep you under at the surgery center I was at) to get into my abdominal cavity. She received so much resistance that she was not able to get in at all. They even called in another surgeon to try, and he couldn’t get in either. Confused? Don’t worry I am too. They told me that I either have so much scar tissue and adhesions from when I got my gallbladder and appendix taken out that they couldn’t push through it, or there is so much endometriosis that they couldn’t get through it. The surgeons weren’t able to see anything at all since they couldn’t get in.

I’m going to have to have surgery again unfortunately. I am being referred to a gynecological oncologist to do the next surgery. I definitely don’t have cancer, oncologists are just better surgeons and work with the whole abdomen and not just the pelvis like OBGYN’s do. As much as I do not want to have another surgery, I am really hoping that whatever it is that kept my surgeon from being able to get into my abdomen, can be removed and that it will help my pain. My surgeon said she’s never had to abort an exploratory laparoscopy and has never not been able to get into someone’s abdominal cavity. My body is so incredibly weird, and I guess there’s a first time for everything. My best guess is that EDS is playing some role in this, but I guess I’ll find out what’s going on soon enough.

Even though this sucks, I think it’s kinda funny. Imagining the surgeon trying to get into my abdomen, only to receive so much push back that she couldn’t is pretty funny to me. I wish I could have seen the look on her face. I told my parents I’m so stubborn I wouldn’t even let someone into my abdomen. This is one of those things that you just have to laugh at or else you’ll be upset. I hope you all are doing well!

*If anyone has ever experienced something like this (especially if you have Ehlers-Danlos Syndrome) please let me know!*

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Yes I’m in the Room: Chronically Misunderstood

For a while now I’ve been trying to come up with some sort of title for a series of stories that have to do with misunderstandings, awkward moments, and chronic illness. This is the best title my brain can come up with for now: Chronically Misunderstood

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Yes I’m in the Room:

First off you’re gonna need to know a bit of the back-story. In the seventh grade (2012) I had my gallbladder and appendix removed. The healing process was long and my pain only got worse from there. I had some complications and vomited bile, all day, everyday or over a week. It was the beginning of missing a lot of school and church, because I felt awful.

This incident happened at a church I used to attend but left a little over a year ago. We spent a total of around six years there and I’ve mentioned before that it had a lot of problems. At this point we had been there for around three years and were pretty engaged. It was a huge church, and it became very easy to slip through the cracks.

One day at the end of Sunday school the main teacher makes an announcement. She tells the class that I had been sick, had surgery, and had been in the hospital. She then proceeds to ask the class to donate items for a care package for me. Now this was a nice gesture and the woman who had the idea was very kind, but there was just one problem. I was in the room.

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She obviously didn’t know what I looked like or who I was, because I was there. Mortified and wishing I wasn’t, but I was there. Someone told her afterwords that I was in the room and she came up to me and told me how happy she was that I was doing better. She completely ignored how awkward the situation was.

The room was full of around 5o kids who were in my grade, plus all the other teachers. Everyone who knew me or at least knew who I was turned and looked at me as she spoke about “how sad” my situation was. My friends couldn’t stop laughing and I was just siting there unsure of how to respond. AHHHHH!

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Now I think it’s hilarious, and I hope you found it funny too. The funniest part to me is that they never “took up items” for me. All that and nothing came from it. I definitely didn’t want anything and didn’t expect anything, but I found it kinda odd to make such a scene and then do nothing. Oh well, all you can do is laugh!

Lots of Love,

Alyssa