Pre-EP Feels

I wrote about my first appointment at the electrophysiologist here.

Tomorrow I am having my Electrophysiology study, and I’m not quite sure how to feel. I’m still not particularly nervous,  just anxious to get it over with. These past several weeks have gone by awfully slowly and I’m starting to feel a bit impatient. Scheduling appointments with any specialists takes a while, but scheduling a procedure with a doctor who’s a specialist within a specialty can be particularly difficult. I’m lucky to have gotten in as quick as I did, even if it has felt like a really long time to wait.

I guess I’m mostly just not feeling very hopefully. I don’t think they’re gonna find any abnormal heart tissue to ablate which means the procedure won’t change anything for me. I’ve had so much testing done and it always comes back normal or just barely off so that doctors aren’t sure what to make of the results. My dad told me he has enough hope for the both of us which is a nice thought, but seems a little rose-colored.

One small thing that’s concerning is that you can’t eat or drink after midnight before the EP. This is routine and not at all surprising but with my terrible veins I don’t want dehydration to make them an even bigger issue. I also am currently taking Topiramate which dehydrates you, so the combination of the medication, no water, and my small deep veins could make placing an IV very difficult. They also go through a major vein in your hip to place the catheter in your heart and I don’t want the placement of that to be an issue. Luckily for me I’ll be asleep at that point and it will be their problem. 🙂

The main concern I have is this procedure being unnecessary. What do I do next? I’m supposed to start Botox soon but I’m not feeling super hopeful about that either. Diagnosis wise I’m not sure what we’ll do but we have to continue on.  If they don’t find anything it’s still always good to have more information even if it doesn’t give me a diagnosis it can help rule other things out. I know this is just a low point and I’ll find some hope and pick myself back up soon. I could be completely wrong and this could solve a small portion of my health issues. As someone who likes to be right this is one of the few times I sincerely hope I’m wrong.

Lots of Love,

Alyssa

 

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