I’m sorry I was a little MIA in September, it turns out college takes up a lot of your time!
In my last update I had just moved to college and was having a rough time adjusting, but I’m happy to say I’m at the end of my seventh week of school and things have greatly improved home-sickness wise. Being a biology major is a lot of work and the classes can be pretty difficult, but I’m really enjoying my biology class. Right now the only thing I’m struggling with is chemistry, which is probably because I didn’t take it in high school, so I’m learning everything for the first time. My first chem exam didn’t go great, which is disappointing, but I think the next one will go better now that I know what to expect.
I’ve tried out a couple different clubs, but I’m still trying to find my people. Being a transfer makes it a lot harder to make friends, since you aren’t in a dorm where everyone is desperate to find friends like freshmen are. I’m hoping that it’s just going to take some time, and as I meet more people through these clubs, I’ll find people to hang out with.
On a health note, things have not been easy. When I started classes I wasn’t feeling well, but I wouldn’t say I was doing awful. It’s currently the seventh week of school (out of 16) and it’s become increasingly more difficult. My health tends to follow a pattern of doing it’s best around late-august and then declining until it’s worst which is usually mid-december until sometime in the summer. This isn’t set in stone, it has strayed and done something different before, but this is a very common pattern for me. It’s frustrating and discouraging to see my body continuing to do this, but I want to be at college and be successful in my classes so bad that I’m pushing so hard to stay here and do well.
Pushing yourself when you’re sick is a damned-if-you-do damed-if-you-don’t kind of situation. I often push myself too hard for too long and end up losing all progress I’ve made and go back to not being able to function at all. However, if you don’t push yourself you won’t succeed in the first place. I’ve been forcing my body to do so much that it has repeatedly told me it can’t handle that I’m afraid the current repercussions are only the beginning. For now, I’m going to keep trying my best and doing as much as possible while attempting to think positively.
I started seeing a new GI since my last GI, who I loved so much, gave me the “I don’t know what to do anymore” speech. I didn’t love the new GI right away, I felt like she didn’t really listen when I was speaking and she made me try a medication that I explicitly told her not only didn’t work for me in the past, but also made things worse. Surprise, surprise it made me horribly ill again. My GI system is beyond messed up and the list of foods I’m able to eat in dwindling down rapidly. I have my second appointment with her at the end of this month, so I’m hoping we can come up with a better plan then.
I also started Xolair shots for the mast cell issues, and received my second shot earlier this week. So far I have yet to see a difference in my symptoms but this medication can be one that needs to build up in your system before it will work, so I’m hoping to see improvement after the third shot. The allergist wants me to cut down on the amount of antihistamines I take, but because I haven’t seen improvement I feel like I’m going to be miserable without them. I’m going to try to cut them down this weekend, so if things go bad then at least I won’t have to worry about going to class while being so itchy and rashy.
I’m also supposed to get my genetic testing results back at the end of this month to see if I really do have hEDS or if I have another type of EDS. I’m slightly nervous for the results, but overall I’m pretty sure I have hEDS and would be surprised if the results said something different. These past two months have been quite the whirlwind, but I feel lucky to even be experiencing the things I’m experiencing.