The Language of Disability

Not that long ago I didn’t consider myself disabled. Society had taught me disabled people were in wheelchairs, had some level of impaired mobility, or had moderate to severe cognitive disabilities. Sure chronic illness had completely taken over my life, but in my eyes I wasn’t disabled enough.

Fast forward to maybe nine months ago, I realized I was in fact disabled by my chronic illnesses and took on the label with pride. For me disabled is both a description of how chronic illness affects my life and a political label. I don’t have a problem with being referred to as disabled, because it’s true.

A lot of people however don’t seem to like the word “disabled.” When I was in high school I applied to become a “Best Buddy” which is a program where you befriend someone in the special education program. Fortunately or unfortunately for me (depending on how you look at it) they didn’t have enough special ed kids for all of the volunteers to have a buddy, so I never got one.

I did go to a training class after school one day, and something from it has stuck with me. They talked about how you shouldn’t ever say someone is disabled, instead say “a person with a disability, differently abled, or handi-capable.” The funny thing about the language of disability is I only see parents/caretakers asking people not to say disabled, never actual disabled people. I’m sure there are disabled people out there who don’t like the term, but I personally haven’t run across any. Many people take on the label with pride and try to advocate for themselves and others with disabilities.

I personally have a problem with the term “differently abled.” Disabled people aren’t differently abled, they are disabled. There are things we can’t do, point blank, end of story. For me some days I can do something and the next day I can’t, but there are also things that I’m never abled to do no matter the circumstances. “A person with a disability” isn’t offensive, I just find it unnecessary. The argument for the other side is that you should put the person before the disability. I feel you don’t have to take that literally. As long as someone is being respectful and isn’t  using a demonizing or belittling tone, then there isn’t anything wrong with saying “disabled people” or a “disabled person.”

Of course you should treat someone like a human being, and not reduce them to their diagnosis. However I don’t fid it necessary to say “person with a disability” every time you speak about disabilities. What are your thoughts? Do you use the term disabled to describe yourself?

Ragged Doll

I am a ragged doll

Dropped in the mud too many times

Beaten, broken, and stained

 

I am a ragged doll

Cast aside

Sprawled out in the bottom of the toy chest

Bending beneath the weight of better newer toys

 

Toys that haven’t been stained

Haven’t been dropped in the mud

Haven’t been broken

 

I spend my nights awake

Wondering if someone will ever want this ragged doll

This ragged, broken doll

 

Some days I appear to be new

My porcelain skin has yet to start crazing

When I shatter will you still pick me over the other toys?

 

I’d want a shiny new doll if I were you

These stains are off putting

And these chips are more trouble than they’re worth

 

In a sea of shiny toys

Who would pick this ragged doll

This ragged, broken doll

Why Do Doctor’s Offices Suck So Much?

This is purely a rant on why I hate the receptionists in doctors offices.

 

Today I had an appointment with a sleep neurologist. My PCP referred me to him, and since I’ve had so much trouble with sleep and fatigue, I thought seeing him would be worth my time. His office is in the city so it’s a 30-45 minute drive depending on the traffic, and we had an 8:30 appointment, so I had to be up way earlier than I normally am.

Fora normal person this wouldn’t be that big of a deal. My body however, hates being up early. Whenever I get up before my body is ready I feel nauseous and get a headache. It’s also inevitable that in the afternoon I’ll crash, hard. Since this appointment was important though, I was willing to risk it.

After driving 45 minutes down there, we arrive to find out they cancelled our appointment. Apparently they had been calling the wrong phone number to confirm the appointment. Everyone makes mistakes, so this wouldn’t be a huge deal, but they had already called my mom multiple times on the correct number, so they did at one point have the right number. We also confirmed the appointment on their online patient portal.

The receptionist also tells us that we’re out of network and they don’t take our insurance. They should have never agreed to see me if they’re out of network. She tells us we could see him, if we paid $250 out of pocket. No ones time, in my opinion, is worth that much for one doctors visit. Since they had taken it upon themselves to cancel the appointment though, we wouldn’t even get to see him today.

Now that’s all bad, but they apologized right? Wrong. Both receptionists said it wasn’t there fault and it must have been someone else. We left because there is no use in arguing with incompetent people. An apology would have made this situation much better, but even when my mom called to try and talk to someone else, they didn’t apologize nor did they care. They even said that they had never heard of online conformation. To which my mom replied, “well then it sounds like you have another problem don’t you?” which made me crack up. They also repeated back her phone number wrong to her three times, which means after going to the office and talking to the receptionists there, they didn’t even change the number in the computer system.

Unfortunately this isn’t the first time this has happened. It’s at least the third time we’ve gone to a doctors office only to find out they canceled our appointment/didn’t take our insurance/never made the appointment in the first place. I understand that it’s a boring job, and that people make mistakes, but this was a long series of mistakes (probably made my multiple people) and they way the handled it was incredibly unprofessional. “I don’t care we screwed up, sucks for you” was the general attitude.

The office manager did called call my mom, and was apologetic. He’s trying to get us in on Monday and is giving us a discount. More than wasting my time, waking up early, wasting my moms time, and making her take half a day off work to take me, not having answers is the worst part. I’m happy this situation seems like it’s going to have a positive ending, but they don’t all turn out so well in the end.

Ugh. What are your experiences with difficult doctors office?

Have you ever showed up to a doctors office only to find out you don’t have an appointment?

 

Trumps Latest Attack on Trans Rights

I would like to say I was surprised to wake up yesterday morning and find the tweets about banning trans people from the military, but honestly nothing he does shocks me anymore.

This however did seem out of the blue to me. No conversation, only a declaration. While technically nothing is set in stone or law yet, even stating these kinds of hatful things is harmful. This is the slow way to eventually ban trans people from existing. If they can’t go to the bathroom and can’t in the military, where can trans people exist then?

I wouldn’t say that I personally support the military in all of its endeavors, but being pro-military or not isn’t what this is about. Your gender shouldn’t determine what you can and can’t do or what you can and can’t be in life. If your willing to put your life on the line, you should be welcomed with open arms and allowed to live an authentic life.

Trump claims trans people are a “burden” due to their medical costs. The US military has quite the track record of not taking care of their veterans, or active duty member for that matter when it comes to health care of any kind. Not to mention not all trans people medically transition, and you shouldn’t assume they will or want to.

There are also over 15,000 trans people currently serving in our military. What’s going to happen to them? He acts like he’s stopping trans people from joining the armed forces, but no trans people are already serving.  You cannot end sometimes career because of their gender identity. Are you going to discharge them like they did back when “don’t ask don’t tell” was a law? We’re going backwards on the progress we’ve made.

I believe this is just the beginning of an attack on the LGBTQIA+ community. He’s gone after trans people multiple times now, and it isn’t going to stop unless there is enough backlash. Even then it may not end. Gaby Dunn made a video about this, and she believes that Trump is going after trans people first, because they don’t always get the support that other members of the LGBTQIA+ members receive. I completely agree, and since that’s probably true everyone in the community, and everyone who is a decent human being, should show up and support trans people.

The LGBTQIA+ community is resilient and we will not let him get away with this.

Living in the Moment

Living in the moment is something I often have trouble with.

Life these past five years has not gone as I planned by any means. I feel like I’m always looking to the future when “I feel better” or “feel happier” thinking life will better then. Instead of trying to enjoy this chapter in my life, I’m always looking ahead.

I started college this summer at my local community college, and it’s been hard to enjoy it. I can’t help but think about how I “should have” graduated high school and “should have” gone to a four year university right away. Those things just aren’t going to happen for me, and I know I need to get over it. I’m guilty of judging people who’ve gone to community college in the past. Always assuming they screwed around in high school and so they couldn’t go anywhere else. Now looking back I realize how prejudiced and rude that was, but I still push those stereotypes on myself.

I’m grateful that my health is in a place that let’s me be able to start college full time in the fall. I should enjoy this time I have feeling well, since I never know when I’ll flare again. Honestly I’m afraid of my next flare. As the fall school year becomes closer and closer, I’m scared I’ll flare right when classes start. I really want to go to school full time this year, and I want to be successful. Instead of enjoying feeling well, I’m often worried and thinking about all of that what-ifs.

Sometimes I just need to take a deep breath and remind myself of all the wonderful things in my life. Sure, there’s gapping holes that I’ve desperately wanted to fill for years, but I have so many amazing things in my life going on too. Even in these times when I’m feeling better I can’t help but feel the exhaustion of my past. I’m only seventeen, but living seventeen more years sounds horrendous. My life is supposed to be “just beginning,” but it already feels so long.

I want to live in the moment.  I want to enjoy the now.

It’s just a lot harder than I expected it to be.

 

Thank You For 200 Followers!

Recently I hit 200 followers and June was my six-month blogging anniversary.

Thank you to everyone reading this and those who continuously follow my blog! When I started this blog, I honestly thought I would post for a few weeks, get bored, and never blog again. Six months in and over 100 posts later, I was definitely wrong.

Reading everyone’s comments always brightens my day, and I love starting conversations, especially about controversial issues. I’ve been able to meet some really cool people online through this blog, and have been exposed to a lot of really amazing writers.

While we never know where life is going to take us, I hope to still in blogging in six more months. Thank you again for reading Queerly Texan and making me feel a little less alone in this world.

Lots of Love,

Alyssa

Religion and The LGBTQIA+ Community

Religion is quite a touchy topic in the LGBTQIA+ community.

Many people have experienced homophobia, transphobia, and general bigotry in the name of religion. These acts of hate often drive queer people away from religion and spirituality in general. However there are also a lot of people, me included, who actively practice a religion and are a part of the LGBTQ+ community.

In my shoes, being gay and a Christian, I find it hard to find other people like me. You get push back from conservative Christians, and I get push back from people in the LGBTQ+ community who have had bad experiences with church. I wish the queer community was more positive and open about some members being religious. I also think if more LGBTQ+ had experiences at welcoming and affirming churches, they would think differently about Christianity.

There are a lot of people who have been deeply scarred by religious parents or leader, and I would never want to belittle them or act like abuse and bigotry don’t happen in the church. However, I would like to see more conversations taking place about the intersection of faith and gender/sexuality. Lots of people are very cynical about the idea of religion, and like to push their negative feelings onto those who are religious. If you aren’t religious or spiritual or whatever, that’s completely fine and your prerogative. It isn’t your place though to tell others how they should live, or what they should believe. Religious people are always told not to push their religion onto others (and they shouldn’t), so don’t push your lack of beliefs onto me.

There are LGBTQIA+ people of every religion. I hope to see more positivity for queer Christians, Jewish people, Hindu people, muslims, buddhists, and queer people of any other religions, in the near future.

Are you religious?

Were you raised in a certain religion?