Being Successful in School while Chronically Ill

School and chronic illness are two things that do not mix well. From the constant absences, and annoyed teachers, to the  piles of make-up work the whole experience can be really difficult, and quite overwhelming. The majority of the time I’ve been chronically ill (roughly 5 1/2 years) I’ve also been in school. Here are some of the things I do to try and be successful in school:

  1. Organize Everything

Having a planner or agenda is important for anyone in school, but is essential for those who are chronically ill. Having to keep up with regular due dates, make-up due dates, and study hall times can be overwhelming. If you have brain fog like I do, it’s also easy to forget things, so writing everything down is important. It also helps you prioritize certain things in your work load.

2. Email Your Teachers

Inevitably some teachers aren’t going to like you if you’re absent all the time. It causes them to have to do more work and they feel like you’re a nuisance. Emailing all of your teachers when your absent helps show initiative and helps you get school work even when you’re not there. I also find that telling them when you’re in the hospital is important so that they know you’re definitely not going to be in class for a few days. Keeping everyone is the loop is the best to make sure you’re not falling too far behind.

3. Push Yourself…

There will be days that are ROUGH. You know you have an exam, a quiz, and a group project presentation that day but your body is rebelling. Sometimes when it feels impossible, you actually can do it. It will suck, it will be painful, but it is possible. You probably won’t have a good day, but you tried as hard as you could.

4. … but not too far

There will also be days that it is impossible. Do not ignore big warning signs from your body just to make it to class for a test. Do not send your body into a huge fit (well a bigger fir than it already is) because of the inner and outer pressure to conform to societies ideas of “successful.” A fulfilling life does not have to include a formal education or a long career. Also missing a few days of school will not keep you from getting the things you want. Will it make it harder? Sure. Will it take longer? Probably. Doing what’s best for your body is the most important thing.

5. Take Advantage of Disability Services

There is no shame in asking for help. Although it will never be an equal playing field between you and your peers due to your chronic illness, disability services can help tremendously. They help especially when it comes to absence policies and dealing with teachers who don’t understand your situation. You have rights and your school cannot infringe upon them just because they want more money from the state. **

 

These are my five tips for being successful in school while chronically ill. Do you have any tips for other students with chronic illness? Let me know!

 

 

** Schools often have a 90% rule where you have to be there 90% of the time and if you aren’t you have to do make-up hours. They want you to be there that much because for every student that makes it to school 90% of the time they get a certain amount of money. Not only is it ableist to force students to stay before and after school if they are absent due to illness, it is also illegal.

 

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Older Siblings Leaving for College

I have two siblings, one brother and one sister, both older.

As of recently I have now watched them both leave for college, and have experienced the  being the much dreaded left behind younger sibling. Both experiences felt different for me, but it’s always tough to watch your siblings move on in life without you.

My sister went to college when I was starting eighth grade. Her last two years of high school she took on a lot of responsibilities and was really busy, so I didn’t see her a whole lot. I was also really sick and spent most of my time in my room, so that contributed to the situation as well. My sister and I are polar opposites and butt heads growing up; the five year age gap also didn’t help. When she left I was sad because I knew life would never be the same, but it wasn’t particularly devastating since we didn’t spend much time together anyway. It was hard to watch her move on, but it was more jealousy than grief. Now that she’s gone we have a much closer relationship and communicate with each other more than we ever have.

My older brother left for college mid August and this time things were different. He did two years at community college and lived at home, so we didn’t have the typical send off after high school was over. There were points in the past six months that I didn’t think he’d even try to apply to a university, let alone get in and decide to actually go. When the time came for him to move out it felt surreal. Now I was going to be the only child in my house. I spend the majority of my time alone and now that time will be even longer since he’s not around.

There’s a million selfish reasons why I didn’t want him to leave, but there’s also some concerns fueled by love. He’s a type one diabetic and the thought of him going so low he passes out and no one finding him or him not taking care of himself is nauseating. I may be his younger sister but I want to protect him and make sure he’s safe.

People often think of parents having a hard time when their children go off to college, but siblings can have a hard time too. Living with siblings verses just living with your parents is very different, and is a hard change to make. For me it’s also hard to watch my siblings move on, because I question if I will ever be able to do the things they’ve gotten to do due to my health.

I know so many people (especially people who only have one sibling who’s older) who had a really hard time watching their siblings go to college. It’s definitely a huge change for the whole family, and can be a rough transition. If your older siblings are leaving for college soon or just recently left, know that it will be hard in the begining but after a while a new normal sets in.

 

 

 

My First College Class Experience

Yesterday, August 10th, was the last day of my first college class!

For reference I took an art appreciation class as a 5 week Summer course.

Many aspects of this class felt a lot like high school. It was a fairly small classroom with around 25 students, and we sat at those typical desks that have the chair attached to the desk. For some reason my teacher didn’t seem to understand the difference between an art class and an art appreciation class. Typically in an art appreciation class you would learn how to analyze art and learn a little bit of the history of different art movements.

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We did the octopus as a quick exercise in class, and although it’s a little messy I’m pretty happy with mine. (two octopus tentacles painted kind of messily in hues of blue)

But did we do that? Haha no. I really shouldn’t complain because I got three hours for doing very little work, but at times it was frustrating. The majority of the class we painted. We painted a seed pod, an octopus, a collage we made out of magazine clippings, and the final painting was a group project where we each painted a piece of a collage. The other project we had was making a sculpture out of polymer clay and a plastic animal. We also had to visit an art gallery and an art museum.

As for my professor, there’s one thing I can say that I think explains his overall demeanor and teaching style pretty well. Last week we watched a documentary about yarn, riveting right? I always arrive to class about ten minutes early since I have a perpetual fear of being late. Since I was there early he was still setting things up. I’m not sure if he realized this or not but he was projecting his computer screen onto the wall. I was looking around the room when I noticed he was googling, “What is the definition of a medium in art?” It took every once of self-control I have to not audibly laugh. He never lectured or really gave directions, and all he would do is show us pictures of things and tell us to paint them. I kept waiting for the “lesson day” but  it never came. I didn’t really learn anything (expect that painting is really hard), but I also didn’t have to do much work so I’ll count it as a win.

I’m super proud of myself because I made it to every single class. 4 days a week for 5 weeks, 20 classes total. To a healthy person this wouldn’t be a big deal, but I haven’t been able to go even a whole week straight to class in five years. Of course it helped that it was only a few hours a day and I had no other commitments, but I would have never imagined even five months ago that I would be able to do this.

Things with chronic illness can change in the blink of an eye. I’ve been out of a flare for a while now, so realistically I know one is going to rear its ugly head soon, but being able to succeed in this class gives me hope for the Fall. I’m looking forward to being in school full time again.

It won’t always be this easy, but having something productive to do feels fulfilling!

Living in the Moment

Living in the moment is something I often have trouble with.

Life these past five years has not gone as I planned by any means. I feel like I’m always looking to the future when “I feel better” or “feel happier” thinking life will better then. Instead of trying to enjoy this chapter in my life, I’m always looking ahead.

I started college this summer at my local community college, and it’s been hard to enjoy it. I can’t help but think about how I “should have” graduated high school and “should have” gone to a four year university right away. Those things just aren’t going to happen for me, and I know I need to get over it. I’m guilty of judging people who’ve gone to community college in the past. Always assuming they screwed around in high school and so they couldn’t go anywhere else. Now looking back I realize how prejudiced and rude that was, but I still push those stereotypes on myself.

I’m grateful that my health is in a place that let’s me be able to start college full time in the fall. I should enjoy this time I have feeling well, since I never know when I’ll flare again. Honestly I’m afraid of my next flare. As the fall school year becomes closer and closer, I’m scared I’ll flare right when classes start. I really want to go to school full time this year, and I want to be successful. Instead of enjoying feeling well, I’m often worried and thinking about all of that what-ifs.

Sometimes I just need to take a deep breath and remind myself of all the wonderful things in my life. Sure, there’s gapping holes that I’ve desperately wanted to fill for years, but I have so many amazing things in my life going on too. Even in these times when I’m feeling better I can’t help but feel the exhaustion of my past. I’m only seventeen, but living seventeen more years sounds horrendous. My life is supposed to be “just beginning,” but it already feels so long.

I want to live in the moment.  I want to enjoy the now.

It’s just a lot harder than I expected it to be.

 

First Day of College

Yesterday was my first day of my first  college class.

Even though I’ve taken all the steps to get here, it doesn’t feel real at all. I’m seventeen and going to college, and it feels weird.

Not a whole lot is going to change. It’s community college, so the work shouldn’t be that difficult, and I’m still living at home. I left high school back in November of 2016, so its been a while since I’ve been to school. The only fear I really have is getting really sick again and having to leave, other than that I’m not too nervous. It’s been five and half years since I’ve been able to go to school full time. That means I was twelve last time I went to school consistently, so it’s been quite a long time.

 

The first day of class went pretty smoothly. I’m taking Art appreciation, since I need an art credit. We aren’t using a textbook and we won’t have a final exam, which was pretty surprising to me. I had to go to Micheal’s after class though and get a bunch of painting supplies because, as a surprise to me, we’re painting. I thought we would be appreciating art, not creating it. I have lots of good artistic ideas (well, good ideas to me at least) but actually executing them well isn’t my thing. I’m sure he won’t grade too hard on how it looks since this is a beginners class though.

Today I have a meeting to finalize setting up disability services with my college. I’m pretty proud of myself for doing everything I needed to do to set this up, and applying for college in general all by myself. The only thing my parents did is fax papers to the college from their  work, since we don’t have a fax machine at home. This will be the first time I’l have to advocate for my health all by myself, which gives me some anxiety. I usually do most of the talking, but my mom’s usually there to fill in the areas I’ve forgotten. Gotta love brain fog!

Things feel like they’re going in a good direction for once. I just hope it stays that way.

What’s new with you? Do you have any Summer plans?

Lots of Love,

Alyssa