I Had Surgery, or Did I?

On June 6th I had an exploratory laparoscopy to look for endometriosis, or did I?

In true Alyssa fashion, things did not go as planned. Preparing for the surgery, everything went fine. I had some anxiety after my pre-op visit with my OB/GYN who was doing the surgery, but then I felt okay and had very little anxiety on the actual surgery day. The day of, things also went well before I went into surgery. They got my IV in with one stick, everyone was really nice, and they even started on time (seriously, when does that happen?). However, I woke up to news I was not expecting to hear.

Essentially, my surgeon tried for an hour and a half (the longest amount of time they are allowed to keep you under at the surgery center I was at) to get into my abdominal cavity. She received so much resistance that she was not able to get in at all. They even called in another surgeon to try, and he couldn’t get in either. Confused? Don’t worry I am too. They told me that I either have so much scar tissue and adhesions from when I got my gallbladder and appendix taken out that they couldn’t push through it, or there is so much endometriosis that they couldn’t get through it. The surgeons weren’t able to see anything at all since they couldn’t get in.

I’m going to have to have surgery again unfortunately. I am being referred to a gynecological oncologist to do the next surgery. I definitely don’t have cancer, oncologists are just better surgeons and work with the whole abdomen and not just the pelvis like OBGYN’s do. As much as I do not want to have another surgery, I am really hoping that whatever it is that kept my surgeon from being able to get into my abdomen, can be removed and that it will help my pain. My surgeon said she’s never had to abort an exploratory laparoscopy and has never not been able to get into someone’s abdominal cavity. My body is so incredibly weird, and I guess there’s a first time for everything. My best guess is that EDS is playing some role in this, but I guess I’ll find out what’s going on soon enough.

Even though this sucks, I think it’s kinda funny. Imagining the surgeon trying to get into my abdomen, only to receive so much push back that she couldn’t is pretty funny to me. I wish I could have seen the look on her face. I told my parents I’m so stubborn I wouldn’t even let someone into my abdomen. This is one of those things that you just have to laugh at or else you’ll be upset. I hope you all are doing well!

*If anyone has ever experienced something like this (especially if you have Ehlers-Danlos Syndrome) please let me know!*

Advertisements

7 thoughts on “I Had Surgery, or Did I?

  1. classical EDS here, when I had my ex lap for endometriosis they put the tools in up higher than usual, more so around my belly button, because of scar tissue from a previous abdominal surgery. they said it would be better to “get a bird’s eye view” so they wouldn’t have to keep trying to find a way to navigate around the scar tissue. my appendix was also retroperitoneal and totally scarred in place. ie, it was a mess in there, but once they took it out, oh man. best surgery ever.

    Liked by 1 person

    1. I’m glad it helped you! My surgeon went in at the belly button and then on the left side right below my ribs. She thinks the next surgeon should go in higher as well, but I have a very short torso ( I’m 4’11) so I’m not quite sure how that will work. Thank you for sharing your story!

      Like

  2. Oh wow, I’d never heard of something like that before! I’m sorry you didn’t get to have your surgery, but hope you can get things figured out. I actually had my first ever exploratory surgery a few months ago and ended up having endometriosis. Personally I’ve had much more relief since they removed what they found and I hope you get the same!

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s