Today, April 29th, 2019 Jaquie Beckwith, also known as Chronically Jaquie on social media, passed away.
I am honestly at a loss for words regarding her passing. I’ve watched her videos for a few years now, starting when my health was at an all time low. I was in a place where I only left my house for doctors appointments, and felt incredibly lonely because of it . Watching her daily vlogs helped me feel less alone in really trying times. She had many of the same health problems I do, and so it was nice to be able to feel like someone else was going through the same thing. Although Ehlers-Danlos Syndrome itself is not deadly, this is a very real wake up call that deadly complications can arise. You truly never know what’s going to happen with these chronic illnesses.
My heart goes out to her family and friends, and all the members of the chronic illness community that feel affected by this. It is hard to grieve the loss of a member of this community, especially one as active as Jaquie. I can’t imagine what her family is going through, especially her husband Judd. I pray they can find some peace during this difficult time. Thank you Jaquie for your advocacy and activism. You will forever be missed in our community.
( I have been gone from this blog for quite a while, and plan on coming back after this semester of school ends. I just couldn’t not say something about her passing. I hope you are all doing well, and are taking care of yourselves.)